Cooperation with Patient Organisations 2025

Kyowa Kirin provides a sponsorship the Kalfos ry 20 year anniversary members meeting held on 12 April 2025.

The meeting offers peer support to patients, shares new information and scientific findings to patients about the disability they have, gives an opportunity to be an active participant in a patient group and helps to create and strengthen the connections between other patients who have the same rare disability.

Support provided: €2700

Cooperation with Patient Organisations 2023

Collaboration with XLH Finnish patient association, Kalfos - Nordic XLH project. Time period: 12th April-31st December 2023

Fee for service: €980

Cooperation with Patient Organisations 2022

Representative from Finnish Pain Association (Suomen Kipu Oy) participating in virtual Advisory board with representatives from other patient organisations to provide expert advice on how to improve disease awareness with patients.
Renumeration provided for the advisory board services: 240 EUR.